I would love to hear your comments and find out what you think about my website, my books, and my writing in general. Anything you thought of me or my site is fair game. Just post all of your comments and reviews on the page below. I will try as hard as I can to respond to all comments. Just know I immensely appreciate them and take them all into account.
Your Comments and Reviews and Literary Agent and Publishers
The more comments and reviews that I get on this site the more likely my books are going to be picked up by a literary agent or a publisher. Literary agents and publishers look for authors with books that have lots of positve comments and reviews.
Getting Enough Comments and Reviews Before I Pass
I need to hurry up and get more attention to my writing and books while I am still alive, and I really don’t know how much longer that will be. My health just keeps declining. I lose more and more weight every day, but I can’t eat or drink by mouth due to my severe gastroparesis and total digestive tract failure. I do recieve TPN (IV nutrition) 24/7, but it is not making a difference.
Also, I get one bladder infection after the next and and am rapidly running out of antibiotics that I am not resistant too. In addition to that, I have made the difficut decision not to return to the hospital no matter what.
Why I am “Do Not Hospitalize”
Every time I go to the hospital, something extremely anxiety provoking and traumatic happens. I don’t need that in my life. Besides, I keep using the hospital like a set of revolving doors. One of these times I’m going to go into the hospital and not come out. The last thing I want to do is die in a hospital surrounded by nurses and doctors to whom I am just another patient at the end of the day.
If I have to die, which unfortunately, I am terminal and have been given less then six months to a year left to live, then I want to die in a stress free peaceful environment surrounded by my nurses and CNAs and mom and dad who love and care for me.
But before I die, I have to get this writing out into the world so that my writing can be my way of making my mark on the world and my short stay on this planet will have meant something. My writing will be my legacy.
So please, get these comments and reviews rolling.
Thanks guys!
Love you all so much!
Tell me what you think
17 Comments
You are so sweet. I love you deeply and appreciate you reading everything I write. I feel like I already know you even though we have never actually met and you just follow my work. Your kind words and support have made a deep impression on me.
I have no choice but to be brave, it’s either that or give up, but the words “give up” are not in my vocabulary.
Yes, the pain is horrific, but this last time I was at Mass General, they had the palliative care team consult with me and write a referral for palliative care at my local area hospital. I left them a message and am hoping that they will call me on Monday. We are thinking that they may be able to provide me with a Dilaudid PCA pump to better control my pain and increase my IV Valium dose. I just keep trying to use my mindfulness skills and choose what details to zone in on and what details to feel and grit my teeth and ride out on. Somehow, one moment at a time, I am making it through my days.
1 year ago
I’ve known Becca Pava, via her Facebook accounts, for a year or two, now. I admire her work a lot. She is so dedicated to writing. It is inventive and true-to-life, at the same time. She also imbues it with a lot of feeling. On a personal level, I admire her tenacity for facing and coping with her illnesses with such courage.
Thank you so much! My writing is what keeps me going. It provides a source of meaning in my life. I am happy to say that you have been faithfully been following me for, more like around two years now, I believe. You are right when you say that I don’t go out of my way to try to make things look pretty or cover up the real cold hard truth with niceties. I put it out there raw.
All my feelings go straight out on the table. It is almost as if when I am writing I go into a zone where the letters just pour out my fingertips onto the page until I get everything out. It is a very cathartic experience. Then I go back and edit it and that is where the craft of writing that I learned while getting my BA in writing and during workshops, comes into play.
Even though my illnesses are terminal and I am 100% aware of that fact, I don’t let them stop me from continuing to produce more and more work. In fact, I think they inspire me more. I want my, writing to be my legacy. Right now they are saying that I have anywhere from six months to two years left to live, I have no choice in the matter. My rare degenerative neurological disease has progressed to the point where we have run out of treatments. All we can do is keep my comfortable.
What I do have a choice about, is how I spend the remainder of the time I have left, and I plan to spend it writing and advocating for all the other young adults that got left behind because their disease was originally dismissed as “all in your head” for way too long. Something in the way our medical system approaches young girls with severe health issues has to be changed, and I intend to spend the next six months to a year working on changing that.
1 year ago
I just finished reading “Changing Destiny’s Destiny”. I couldn’t put it down, the story was riveting. One harrowing experience after another kept me up all night reading!
I can’t help but wonder about all the children lost in the system of mental health care, which is more like UNhealth care!
I would recommend this book for adults and for adolescents as well.
I am so glad that you enjoyed my book! So many children get lost in the mental health care system. If it wasn’t for my parents I would have been one of them.
It’s really awful the way psychologists and psychiatrists can just so easily go around slapping labels on their patients, and it’s really awful that in mental health care for both children and adults, half the time the mental health care workers just dismiss what their patients have to say because “they’re just psych patients, they’re not reliable”. I have had my opinion dismissed so many times because of this, when I am probably more educated and have a higher IQ and have accomplished more in my life, than the counselors working on the psych units.
Luckily I don’t have to go to psych units anymore. I haven’t been to one since 2015.
First of all, I haven’t had a major psychiatric crisis where I really harmed myself since about 2017. When I did they kept me on the medical floor for three weeks trying their hardest to try and get me of TPN and IV push meds and on tube feeds and J tube meds so that they could get me on a psych unit. Their efforts were not successful.
My body can’t tolerate tube feeds, and I need IV meds to hold down the few J tube meds that I do get. When they were giving me all J-tube meds the meds would go in the J tube and then I’d get so nauseous and unable to tolerate them so they would go back up my intestines and drain out my G tube into the G tube drainage bag that got it’s contents periodically emptied and flushed down the toilet.
After three weeks of nonsense I finally spoke up and said, “I realize overdosing on Phenergan was really dumb, I will never do that again, next time I feel unsafe I will call my therapist, psychiatrist or crisis and have them walk me through some coping skills to use. I can even sign a safety contract”.
Bingo! Magic words! They were more than happy to get me out of there. They couldn’t take me on the psych unit anyway because they couldn’t get me off TPN, IV fluids, and IV push meds.
In “Changing Destiny’s Destiny” I made up that they could have a nurse stay with her so that she could go to psych units, but I never got my central line until I was 19, I just wanted to include the central line in the story so i had her have it early. I once, in 2015 had a nurse stay with me on a psych unit so that I could be admitted, but they quickly discovered it was too much and discharged me after 24 hours.
Since 2017 I have had no psych crises. The plan I have created with my psychiatrist at Mass General is that if I am in psychiatric crisis I need to go to Mass General and be admitted to a medical floor where they can have psych staff meet with me daily. I have never had to use that plan.
Can you leave a review of my site for Google Business? You just need to click on the link i am going to give you below and type in your review. If you mention my book, that would be super cool!
The link is:
https://g.page/r/CcySN1SZc0EDEBM/review
1 year ago
Just got finished from reading a most fascinating, helpful , and informative article written by none other than our own literary rock star, Miss Becca Pava, of course! She speaks about mindfulness and a positive outlook no matter what you may be suffering with. And even if you aren’t suffering , she reminds us on how to keep that bright positive light that only our girl, Becca can do ! I’d advise everyone to read this a bit nd and pass along to family and friends. Was easy to understand and of course so well written. I took a lot away from this passage. And will give it my best effort to follow her words and live like that. Thank you , my dear sweet Becca. I’m constantly learning from you, my friend! All my love 😍 and respect, Gerri xxxxss
I am so glad that you enjoyed my article on practicing mindfulness. Positivity really is key, you can have nothing in your life, but as long as you can stay mindful and look at the positive side of things than you can still be the happiest person in the world. It’s all about perspective. I’m so glad that you found it easy to understand, I didn’t want to get too technical and lose people. I’m really glad that you found it well-written as well. I really do hope you will be able to incorporate some mindfulness techniques into your own life, you will find yourself so much happier and you will find the world to be such a friendlier, kinder, more joyful place. Love you so much too! Happy reading, Becca
1 year ago
Becca,
I’m so glad you opened up to us all about your struggles! You really do make a huge difference in this world. I know, whenever your time comes to leave this world, your family, friends, and fans will mourn, but we will also celebrate a life that, though shortened, is truly full and well lived. I’m looking forward to your next posts!
Thank you so much David for your inspiring words. I feel like if I have to suffer I might as well make something of it. I’m so glad that you think my life is full and well-lived. That is exactly my goal. I want to create a legacy where people can say wow, that girl made a difference in the world, she changed my life by showing me that you can still live a full life even if you do have a debilitating chronic illness!
11 months ago
I have bought a few products from Becca, including audio files of her narrations, and I am impressed with how good of an author she is. She truly is one of a kind, and her experiences, and the experiences of others, lend themselves to great literary work. I look forward to telling others about her work, and I will buy more of her work in the future!
I am just so glad that you enjoy my work so much and that you spread it around to others. I plan on writing my heart out until the day I die, it is what gives me meaning and purpose, and I like helping other people understand not only me but everyone else with severe medical or mental health issues who usually get swept under the rug or forgotten in the corner because they are too weak to follow the crowd. People like yourself who are willing to read my work are part of a major societal shift towards inclusiveness and the defeat of stigma. You are an amazing fan and even though I have never met you in person, I now consider you my friend.
11 months ago
Hi, unfortunately, I faced challenges with the slow loading speed of your website, leading to frustration. I recommend a service, linked below, that I’ve used personally to significantly improve my website speed. I really love your website…Optimize now
Tell me what you think