Thank you so much for stopping off at my Chronically Alive Blog.  Writing Chronically Alive has been a very cathartic experience for me.  When I originally started writing it in March of 2019, it was just a few notes on my phone jotted down in the hospital after I had been told the results of my latest skin biopsy for my small fiber autonomic polyneuropathy.

I had less than 1% neurites left at the site they had biopsied.  Small Fiber Autonomic Polyneuropathy can’t get worse than that.  The question beating at the back of my brain was whether or not there was a cure or hope of stabilizing the disease so that I could live with it.  It was a question I was scared to ask.

When I finally asked the question, I wished I had just left the issue alone.  The form of autoimmune-mediated small fiber neuropathy I had was just going to keep getting worse and worse until it took my life.  That was even with the IVIG treatments they were going to prescribe for me to try and slow the progression down.

Writing this blog was the way I coped with the news.  I went all the way back to the very beginning when I first got sick at age 8 and wrote up everything that had happened so far.

If you have any questions about my blog, my writing career (I have a BA in writing from Elms College, have published two books, have a third one on the way, have published multiple literary journal articles, and write screen content and blog for a company called TemplesHub that is designing an app to increase overall wellness.), my medical conditions, my treatments, or anything else under the sun, I would be happy to answer them.

All you have to do is fill out the form and I will respond as soon as I possibly can.